Powell baby dies of rare disorder

Mabry Kate Webb

POWELL (WATE) – Mabry Kate Webb was just a week away from turning 11 months old when she died on Saturday.

Previous story: Covering Medicine: Family seeks newborn screening in Tennessee 

Mabry Kate had a rare genetic condition called Krabbe Disease.

It’s a disorder that affects the protective myelin coating of nerve cells in the brain and throughout the nervous system.

In most cases, symptoms of Krabbe develop in babies before six months of age.

Mabry Kate’s developed when she was three months old.

Mabry Kate Webb (Courtesy: Miracles for  Mabry Kate Facebook page)
Mabry Kate Webb (Courtesy: Miracles for Mabry Kate Facebook page)

There is no cure for Krabbe, but stem cell transplants from umbilical cord blood have shown success in babies treated before symptoms start.

The Webbs have fought for newborn screening in Tennessee.

Previous story: Covering Medicine: Knox County couple pushes for screening in newborns for rare genetic disease

So far, their efforts have succeeded in getting a newborn screening bill filed by State Representative Bill Dunn.

To show your support for the bill, and learn more about it here.

Friends of the family have organized fundraisers to offset the cost of mounting medical bills and funeral expenses.

The Webbs
The Webbs

On Feb. 16 family and friends will participate in Chili’s Give Back Night at 6635 Clinton Highway from 5 p.m. to 9 p.m.

On Feb. 28. an indoor yard sale will be held at Jubilee Banquet Facility located at 6700 Jubilee Center Way. If you have items to donate to the yard sale, please send an email to Miraclesformk14[at]gmail[dot]com

Funeral Services for Mabry Kate Webb will be held at Powell United Methodist Church on Feb. 11 at 7 p.m. The wake will be held from 5 p.m. to 7 p.m.

The family is requesting that everyone wear the royal blue.

In lieu of flowers, donations for Krabbe research may be made at http://www.huntershope.org

For more information on Mabry Kate’s story, visit Miracles for Mabry Kate on Facebook.

 

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